Practicing Self-Care in Stressful Times

It is a universally acknowledged truth that stress is an inescapable part of life. Stress can come from anywhere at any time, and it's always a pain in the ass. I don't know anyone who enjoys being stressed out, and anyone who says otherwise is flat-out lying. But what matters when it comes to stress is how you deal with it. You can either let it consume you or you can manage it in whatever way you find best de-escalates it. (You can also shrug off anything that might give you stress but that will tend to come back to haunt you.)

I've been trying to find out how to do that second part for all of my life. But I know one thing is always reliable - caring for myself is critical to ease stress and prevent it from consuming me. And nowadays, I feel the need to engage in self-care more than ever before to maintain my well-being.

The Curious Case of Autistic Impostor Syndrome

When I first learned I have autism, it felt like a simultaneous blessing and a curse. As I have previously wrote, I spent most of my childhood feeling like an outsider due to things I couldn't control and figured I was slowly going mad because no one would give me a straight answer of why I was the way I was. So it's easy to imagine that the news of my diagnosis was a huge relief in the sense that all my questions were answered. It was, but it also came with the cost of learning that I was not and never will be "normal" because of all the challenges I had. And with not being "normal", my life would always be harder than most people's.

In spite of this, I'm often told I'm a "success story". I made my way through school being fully mainstreamed into honors and AP classes, graduated from college in four years, and received a Masters in Social Work from a prestigious university. I have a good steady job where people appreciate my contributions and have made headway into participating in the disability community of Los Angeles. I live on my own, I don't excessively struggle with money management, and I have good friends and family I can depend on. At the risk of sounding arrogant, it does seem like I am a "success".

So why do I constantly feel like I'm barely keeping it together and what I do isn't nearly enough?

Am I Thirty, Flirty, and Thriving Yet?

Come the 8th of April, I will enter my fourth decade on this planet we call Earth. The closer I get to that fateful day, I find myself thinking of the 2004 movie "13 Going on 30". In that thirteen year-old movie (ha), an awkward burgeoning teenager wishes she could be "thirty and flirty and thriving" and through the power of magical realism finds herself in a future thirty year-old self only to find what she wants as a teen isn't all that's cracked up to be. It's never been a movie I particularly enjoyed, but as I get older, the theme of wanting something for your future self and ending up in a place you didn't expect has been especially relevant to my life. What I wanted as a child didn't pan out and what I have now leaves me wondering how I got there and if it's the right place for me.

I guess you could say that as a kid, I too hoped I would be "thirty, flirty, and thriving". And while I didn't quite get what I wanted as a kid, maybe I ended up with something better.

Help Me - I'm Becoming an Autistic Adult!

Come May, it'll be a year since I graduated from USC with my Masters of Social Work. A full year since I left the confines of school and was thrown headfirst into the wider world to fend for myself. Now as I have mentioned before, I got pretty lucky as far of my transition post-grad school into working life in a pretty inclusive environment with some helpful strategies to ease my new responsibilities of bill paying, budgeting, and schedule management, among other things. And all of this wasn't just sprung upon me unexpectedly upon graduation - my parents spent years teaching me various life skills such as cooking, health care, and managing my money (which I was horrible at until I realized my pay check was gonna cover my rent and other bills previously paid for by my parents). I had also been living on my own for the past four years and thus had to work out how to care for myself outside parental supervision and care. And I knew how to work out bus routes from college before getting my driver's license at age 23. So I guess I was more prepared to adjust to adulthood than I previously thought I was.

But many autistic people aren't so prepared for that adjustment. In fact, becoming an autistic adult is fraught with challenges. And that's largely because autistic people face a world that is not built for nor ready to accept their needs and wants.

Turning to Face the Change

I spent this New Years visiting one of my closest friends in San Francisco. It was a great five days (despite having a nasty stomach bug the day I arrived) and it felt good to see her, as the distance between us (her in San Fran and me in Los Angeles) makes that kind of engagement rare. And it was exactly what I wanted it to be - low key, relaxed, and just shooting the shit with a really good friend in one of my favorite cities on earth.

We talked a lot about our respective years during that week and it got me thinking a lot about transition. The two of us have spent the last few years in graduate school pursuing degrees designed to groom us for specific professions so a lot of our lives have revolved around school and all the elements that come with it. But with me graduating last year and her about to graduate this year, we have come to terms with that leaving school means no longer depending on certain beats to center our lives. After graduation, you have to make it on your own.

One of the most consistent things said about autistic people is that they're adverse to change. Any disruption to things or patterns we understand throws us into a tailspin of frustration and chaos, convention says. I can't claim to speak for every autistic person on the planet, but I'm kinda in the not-cool-with-change camp. Why should I be? I make an effort to keep things consistent in a way that works for me. I like having certain things I can count on. Any change to that throws me for a loop to a point where I have major trouble processing it.

But change is an inevitable part of life. To avoid change is futile. And I can attest to that as 2015 was the year of huge change that was hard to adjust to.

The Hesitant Anglophile, or How England Helped Me Come Into My Own

I don't think it's a stretch to say Americans have longstanding obsession with the United Kingdom. It probably comes from the fact that the US was one of their former colonies and the first to fight them for independence, but we've never truly separated ourselves from the UK. Our histories are intrinsically entwined and we've always been dependent on establishing some kind of alliance together, for better and for worse. And if Hollywood trends are anything to go by, the next generation of popular actors and shows are coming exclusively from the British Isles. America has British fever, and it's probably never going to go away.

I cannot claim to be exempt from this rule, as the title of this post suggests. Ever since I was a child I have attempted to perfect the golden standards of the British accent. (Last time I checked, someone told me I sounded more Australian than English.) I watched Monty Python and Eddie Izzard on repeat throughout my teen years. I have an unhealthy obsession with British television from Doctor Who to Luther to My Mad Fat Diary. Many of my favorite actors, singers, and bands are British (including my celebrity crush, who I'd rather not name here). I've always been fascinated with British history as the sort of real trendsetters of Europe - particularly the Tudor era where Henry VIII and his descendants pretty much began modern England with petty marriage politics and paranoia. Many of my favorite plays come from England, from Shakespeare to George Bernard Shaw. I can't escape it - I will forever be fascinated with the United Kingdom.

The key world here is "fascinated". Whenever I hear someone say they're an Anglophile, I generally find that they think the sun shines out of the UK's ass. And if life has taught me anything, the grass is always greener on the other side. I recognize the United Kingdom has some serious issues - I don't understand how anything gets done in their parliamentary system, there's major class divisions affecting their current political and cultural landscapes for the worse, and they gave us Fifty Shades of Grey. No place is perfect, just as no one can be perfect themselves.

That all being said, I still adore the United Kingdom. And the reason why is that life has given me two major opportunities to love the nation - a theater partnership with a British theater school and a semester aboard in undergrad. And those experiences have truly helped me come into my own.

How Many Spoons Does It Take To Live A Productive Life?

“A person who is chronically disabled or ill only has a limited amount of expendable energy each day. The spoon theory uses a metaphor of spoons to turn energy into a measurable concept. A person living with chronic illness or disability only has a certain number of spoons in their possession each day, and every small action a person takes can result in a lost spoon. Once a person loses a spoon, it is very hard to get that back until after a full night’s sleep. Simple actions like getting out of bed, taking a shower, walking, and driving can require enormous amounts of energy that people don’t have.“

Quoted from thespoontheory ‘s faq



There are times where I have about zero energy to do just about anything. For example, I'll want to go to the gym and work out, but the muscles in my legs have weakened where I can barely walk. I'll want to write in my journal or on this blog but can't work up the mental capacity to think of anything. I've also gotten physically and emotionally overwhelmed during family trips in humid or tropical climates, despite really loving the vacation itself. I recently barely had enough energy to slice limes and set the dinner table for my father's birthday, in spite of wanting to contribute more to the festivities. I've never quite known why this keeps happening to me and has been a reoccurring source of frustration for me and everyone I know.

Then I discovered Spoon Theory.

Coined by Christine Miserandino of "But You Don't Look Sick", spoon theory postulates the challenges disabled or chronically physically or mentally ill people face presents them with a limit to energy and possibilities to get through the various facets or life than others do. Ergo, every performable task has to be carefully thought out as to what is feasible for that person to do each day and how to deal with every possible scenario. Time and energy has to be thought out in a way many people would never think about. It's not being lazy, it's being strategic given a cap of mental and physical ability.

There's a lot to consider with spoon theory as it pertains to me. I have a lot of energy and capacity to do a lot of things that other autistics might not. I can withstand a lot of sensory sensations (I can wear a variety of fabrics, I can handle exercise as long as I drink a lot of water, I can stand hot weather with an abundance of fans or air conditioning, I love being hugged), I can care for myself (I cook, shower, clean, engage in self-care), and engage in a variety of activities like work and social activities. But I do often find myself limited by the amount of energy I have to do many of the aforementioned given the day and time.  I've taken more mental health days from work and school than the average person, I feel limited in exercising my cooking skills, and I don't have the capacity to follow multiple conversations with multiple participants. And it manifests itself in physical weakness and mental and emotional exhaustion.

I'm trying the find ways where I don't exhaust myself doing certain activities. And it's only been recently that I've found any sort of success. If I have to move a lot of heavy objects over a long period of time, I have to take frequent rest breaks so I don't go into meltdown mode. When I train, I know that I can only jog two short laps without my knees buckling down. During large family dinners, I often need to leave the gathering to lie down and rest away from others so I can clear my head and let my stomach rest. All of this is done to make sure I don't exhaust myself, even if I feel like I need to do more. And I'm lucky that I have family and friends who understand and let me do this - no one wants to see me when my limits have been pushed.

As much I like to define myself by what I'm able to do rather than what I'm unable to do, it's critical for people to recognize other's limits disabled or otherwise. Not everyone has the same amount of ability to do things as others and recognizing that leads to greater understanding of others' experiences. If empathy is defined as understanding and valuing other people's personal perspectives and experiences, then understanding others' limitations is a great exercise in practicing empathy. And practicing empathy is critical to progressive growth in the world.

I'm definitely able to do a lot but I have a limited amount of spoons to do it. The more people understand and respect that, the more comfortable I and others will feel operating in the world at our own pace.